I am not a victim to my crohns
disease. I am not embarrassed about my disease and what comes with it. I choose
to face everyday head on and look at the hand ive been dealt as a blessing in
disguise rather than a death sentence. I am not a victim.
Crohns disease is most commonly
diagnosed in young adults, age 18-24. This also happens to be one of the most
important and difficult times in ones life. It is, or was for me, when I was
learning about self-confidence, about respect, and about who I was. From the
start, I fell right into the statistic. I was diagnosed shortly after my 18th
birthday on the night before I was leaving for college. Although I was 18 when
I first heard the words “crohns disease”, I was sick for many years before I
decided to seek answers. Being different in high school is the one thing I
didn’t want to be, but my sickness forced me to learn things about myself and
change into the strong independent person I am today. Blessing. When I was 16
all I cared about was what I was wearing to school the next day, who was
hosting Saturday nights party, and how I could sneak home after curfew. Having
to change plans because I couldn’t leave my bathroom was not in my agenda, but
it became my reality. I knew on the day I received that phone call that I had a
choice to make. Be a victim, or be a warrior.
I like to think of myself as a
positive person when it comes to most, if not all aspects of my life. Yes,
sometimes I am pessimistic about the Cleveland browns superbowl hopes, but lets
face is, who isn’t? On the other hand, when it came to my disease I never
allowed myself to be defeated…or at least until recently.
Since my surgery in September 2014
that left me with a permanent ileostomy, I have achieved medical remission from
crohns disease. For the first time in the 8 years since I was diagnosed I am
healthy. I often get emotional when I am doing something as simple as gardening,
going on a roadtrip, or as adventurous as hiking the hills of California
because these are all things I was not able to do 2 short years ago. I do not
take anything for granted anymore. Nothing. I know that everything I am able to
accomplish in my day to day life is a gift, because I remember very clearly a
time when I would not have been able to do it. This healthy version of myself
has so many plans and dreams for the future, including the one thing I have
wanted more than anything; a family.
When it comes to my crohns I have
always been comfortable, which is strange considering that crohns deals with
intestines, and poop, and things one generally would not talk about. You could
ask me literally ANYTHING about my crohns and I would get so excited and tell
you everything I know. When it comes to infertility I am the opposite, and I
don’t know why. Even writing the words down pains me. I suffer from
infertility. Because of all the trauma that my body has endured due to my
surgeries and medications from crohns disease, my ability to do the one thing I
feel like my body was made for has been compromised. When it comes to
infertility I feel more like a victim than a warrior because I cant understand
why this happened to me… To help me step out of this negative stigma I
associate myself with, I am choosing to share my journey. For the past few
months, my husband River and I have started the process of IVF, or in-vitro
fertilization. In short terms, the process involves many different injections
to stimulate your ovaries to grow more eggs than the body typically would,
daily ultrasounds and bloodwork, a surgery to remove the eggs, where they are
then combined with the sperm and grown in a lab before being transferred back
into the female already fertilized. I have been through a lot in my life, but
this is physically and emotionally one of the hardest things ive ever done. The
process of trying to have a baby is hard enough before you add countless shots
and hormones…
Many of you have seen pictures ive
posted in the past few weeks in the hospital or at a doctors office, which once
again has started to feel like home during these past few months. Although this
has been a process that we don’t yet know the outcome of, the one thing I do
know is no matter what the pregnancy test says at the end of this, it is a
success in my book. It has brought River and I to a new level in our marriage.
If your marriage can survive crohns disease it can make it through anything. If
it can survive IVF, you deserve a fucking medal. Whats next? We wait. We wait
and we enjoy each others company and time spent together, because if all goes
as planned time will be few and far between in 9 months…
Only time will tell.
That photo of you and River holding hands with the caption "together in 3..." (or whatever it said) made me cry instantly. It was so touching. Now to see that it was part of your IVF journey makes me weep all over again. I'm hoping and praying for the best for you two! You are and will be amazing parents however it works out.
ReplyDeleteLove you both. Praying for your family and hope that it grows. No one deserves it more than you two. Love from the taubes and doodle����
ReplyDeleteLove you both. Praying for your family and hope that it grows. No one deserves it more than you two. Love from the taubes and doodle����
ReplyDeleteOmg!!! I am so excited for you both! I am praying for you guys!!
ReplyDeleteSaying lots of prayers! I trust my sweet boy with you every day and I wouldn't want it any other way!! I brag about you guys to my friends all the time (I have the best daycare!). You WILL be the best mother!!!
ReplyDeleteGood luck you guys. I hope you are successful. Celina, you should be so proud, to speak about your journey. Stigma and shame can be so debilitating as I well know. Your courage in telling your story will help many more people than you may ever be aware of. People so often go through life pretending everything is "fine", but there are struggles and not feeling alone is a great step in healing. You are a Warrior and I salute you.
ReplyDelete❤️❤️❤️
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